Building a Cape: Reflections on the Whitman-Walker Walk to End HIV

By Sara Doverspike

Superman was one of my favorite superheroes while I was growing up. The guy had it all; the traditional charm of a small town boy, the strength of whatever the storyline requires of him, and a humanitarian heart as big as his abdominal muscles. But what I admired most about Superman was how he utilized his super-human powers, especially the ability to fly. Flight in Superman’s context is associated with courage—to do what is right, to actively fight for social justice. To put on a cape and fly makes one visible as a hero, it takes away the comfortability of the status quo, and encourages one to act in a way that makes them great. That makes them super.

I made a cape for this year’s annual Whitman-Walker sponsored Heroes Walk to End HIV in DC. It was a child-sized, Amazon-purchased piece of synthetic material that had a WordArt designed “superhero” logo package-taped to the back. It wasn’t particularly comfortable to wear, or something that Marvel would invest in to be sported by the next big hero. I was afraid that it wouldn’t be significant.

The Whitman-Walker Health clinic has a rich history serving the greater Washington, DC area since 1973, and has been committed to the “highest quality, culturally competent” healthcare for all individuals in the community, with their particular expertise in LGBT and HIV care. This year marked the 29^th annual Walk to End HIV, featuring a superhero themed fundraising walk and 5K to benefit Whitman-Walker and their commitment to comprehensive and accessible healthcare to those affected by HIV/AIDS. According to the CDC , more than 1.2 million people in the United States are living with HIV, and about 1 in 8 people are unaware of their status. The lack of knowledge and testing can largely be attributed to the stigma and discrimination attached to individuals living with HIV, from how it is transmitted to the presumptions of the lives of the people that HIV effects.

When I arrived at the walk, I was overwhelmed by all of the capes being flown. They were all different kinds of fabric and sizes, some were plain or multicolored, some had original logos, and some came with a full super suit complete with pleather boots. And then some came in the form of words of encouragement and personal stories about HIV has affected their lives. Some capes were the dance moves of a group of strangers with the help of the pre-walk warm up DJ. Some people put on their capes when they asked someone for help, or advice about their status, or for a picture with some of their HIV positive role models. And some capes were silently present in solidarity, immersed in the atmosphere of a community dedicated to proving that no cape had to fly alone. Every person had put on a cape; every person had become significantly super.

When the walk began, hundreds of people consumed the streets of downtown DC and all the capes weaved themselves together to create a colorful and beautiful display of support for their friends, family, people they haven’t met or would never meet, the people standing next to them, and themselves. Together we flew through the streets, past the iconic Washington monument and stopped all the cars and passerby in their tracks (who I would presume were asking themselves the classic question of whether we were birds or planes). The Superman I had loved long ago seemed less tangible and more fictional than ever before, as I knew I was among the heroes who have fought their battles without super strength or the ability to flee to the sky when problems on the ground are tough. These are the people that walk among us and achieved greatness through their courage in the everyday. They’ve had capes on all along, even when I hadn’t noticed.

After the walk, I tucked my synthetic cape neatly away in the closet. I haven’t taken it out since; but every now and again, when I’m reminded, I feel its presence.

Resources

To learn more about Whitman-Walker and the Walk to End HIV:

https://www.whitman-walker.org/

http://www.aidswalkwashington.org/index.cfm?fuseaction=donorDrive.event&eventID=505

To find the closest testing center:

https://locator.aids.gov/

To find a testing center and knowledge about testing/your status:

http://www.cdc.gov/hiv/testing/

http://www.buzzfeed.com/caseygueren/get-tested#.qiQXMRvaa

Know you are not alone! There are plenty of resources available to connect friends living with HIV, such as this encouragement wall:

http://www.imstilljosh.com/encouragement-for-newly-hiv-infected/

You are strong. You are loved. You are super!

Sara Doverspike is a Stigma, Discrimination, and Gender Intern at the International Center for Research on Women, and proud to be a stigma warrior.

Growing up with HIV in sub-Saharan Africa: One Girl’s Story

By Jennifer Abrahamson

Senior Director, Strategic Communications, ICRW

This post originally appeared on ICRW's blog.

Growing up in this day and age can be difficult for anyone. Entering adolescence in particular can be extremely complicated, as boys and girls wrestle with new responsibilities, their futures and their sexuality. In many parts of sub-Saharan Africa, the risk of HIV infection adds another layer of complexity. For girls like Joyce*, who was born HIV positive, adolescence and early adulthood can prove especially challenging.

I met Joyce in a small courtyard tucked deep within a web of unpaved roads in a slum area of a sub-Saharan capital. Shy and unassuming, she looked much younger than her 17 years. She told me that she had dreams of becoming a lawyer someday, but it soon became clear that attaining that goal would almost certainly remain out of reach.

Her story is heartbreaking. And because she fears being stigmatized, she hasn’t shared the depth of her plight with her neighborhood peers. Shortly after Joyce was born, her mother succumbed to AIDS. As she got older, her father grew increasingly ill and was largely unable to work. As a result, Joyce dropped out of school because she couldn’t afford the associated fees, and at the time we met, she had stopped taking her anti-retroviral (ARVs) medication in part due to the prohibitive cost of transport required to retrieve them from the hospital. I later learned that her father passed away a few hours after our meeting.

There are legions of girls like Joyce in sub-Saharan Africa who were born HIV positive and who are now coming of age while living with the virus, and facing enormous health challenges, as well as stigma and discrimination. And adolescent girls in many countries around the world are also at high risk for acquiring HIV because of social and institutional factors, including child marriage and gender-based violence.

Zambia is one such country. UNICEF estimated there were at least 80,000 adolescents living with HIV in Zambia in 2009. In order to better understand the challenges adolescent girls living with HIV face as they transition into adulthood, ICRW, in partnership with public health research organization, Zambart, is conducting a first-of-its kind qualitative study in the country with support from the MAC AIDS Fund.

The encouraging growth of home-based and provider-initiated HIV testing and counselling in Zambia will likely increase the number of adolescent girls who learn they are living with HIV in upcoming years. As a result, there will likely be an increased demand for treatment, care and support services in Zambia. Despite this burgeoning demographic of young Zambians living with HIV, psychosocial support and health care services for adolescent girls is limited. This deficit is worsened by the prevalence of HIV-related stigma and discrimination, as well as gender-based prejudice that affects the daily lives of girls living with HIV.

In an effort to address this gap in services, the ICRW-Zambart study is examining the unique stigma- and gender-related obstacles girls endure while facing some of the challenges of living with HIV such as adhering to medication regimens and clinical appointments, navigating safe sexual relationships, and handling the psychosocial challenges of learning of and disclosing their status. Through participatory workshops and interviews, ICRW will identify key challenges and stigma-related concerns surrounding HIV and pinpoint areas for intervention development to support healthy transitions to adulthood for these girls.

With this information, ICRW hopes to inform national programming and policies for adolescent girls living with HIV in Zambia. Beyond that, ICRW hopes this study will garner increased attention and action to address the needs and concerns of adolescents like Joyce living with HIV around the world, with a particular focus on addressing HIV-related stigma and discrimination.

As for Joyce, today she is doing much better, although she still faces many struggles. She recently celebrated her 18th birthday, she’s back on her ARVs and her health is improving every day, and she has joined a drama-troupe with other HIV-positive youth. Although finances are tight, she also has aspirations to enrol in a hotel management training course that will give her the tools needed to support herself, stay healthy and if not reach her ultimate dream of becoming a lawyer, to blossom into adulthood.

*Joyce is not her real name. To help support her education and daily needs, please write to Erin Kelly at ekelly@icrw.org.