Showing posts with label Josh Robbins. Show all posts
Showing posts with label Josh Robbins. Show all posts

Tuesday, September 9, 2014

New HIV Campaign: My Status is Not A Secret by Josh Robbins


This post originally appeared on Josh Robbins' Blog


Conversation-starting think tank behind “Knowing” and “Open” partner with top visual agency for new engagement platform and interview series by wanting everyone to say “my status is not a secret”



The creative collective The Advisorie Group, the peeps behind “Knowing” and “Open“, never cease to get my happy-wheels turning easily.  But, this time, the championship HIV campaign might have just been taken when they partnered with Parker Trewin (AIDS/LifeCycle participant) and the hot creative agency Column Five to launch “My Status Is Not A Secret.”
“If people are going to be motivated to get tested and, if needed, get treatment, we need to bring conversations about HIV/AIDS out of the dark and into the light,” Trewin says. After living with HIV for 10 years, Trewin only recently came out to his family as HIV-positive. He adds that, “We can each play a part, which is just one reason for me to finally tell my story—and why my status is no longer a secret.”

This year, Trewin rides in the AIDS/LifeCycle with an ambitious fundraising goal to give back to two organizations that have existed since before HIV had a name: the San Francisco AIDS Foundation and the LA Gay & Lesbian Center. To support Trewin in his efforts, the My Status Is Not A Secret site offers opportunities for visitors to help fund AIDS/LifeCycle participants.
But that’s the obvious of the new HIV campaign launched 4.2.14.
For me, I’m always interested in the “why” of things.  Maybe it’s the inherent reaction I have that dates back to my childhood, when I would always ask my parents the question: “But, why?” and they would always answer: “Because.” — driving me insane.  But, I’m curious.  So, I asked the team to answer my “why” questions. They agreed.
Here are the players chatting– Parker Trewin (Inspiration for the site), John Saint-Denis (The Advisorie Group), Ian Klein (Senior Producer, Column Five and all around cool guy) and mentions of Jason Lankow (the King guru/CEO/Co-founder of Column Five). And, well, I’m Josh Robbins– and I run a cool HIV blog.
ISJ:  Why the campaign? Why the website?
Parker:  The campaign started from an ask for the AIDS/Lifecycle – a 545-mile charity bike ride. I asked Jason My Status is Not A Secretif Column Five, who I had worked with, would donate some funds to get me on my way.  Jason said he thought it would be more powerful to donate some time. (Actually a lot of time.)  He assigned me Ian and Andrea Bravo and we investigated two reasons why I was so passionate about my efforts: getting a second chance at life and combating stigma. We thought “stigma” was the more powerful theme and what started out as a fundraising site grew into something we think is much bigger. What makes it unique are the stories, which are incredibly powerful and are told from a very personal perspective – from gay, straight, positive, negative, men, women, white, latino, african american, middle eastern. It was important to me that we explore in the widest range possible why people (and why people don’t) know their status and share their status. I was interested in not the choices people make but why people make those choices. And if we lead by example couldn’t we then help people be more empowered to make better choices? It was a way to give back.
"What makes it unique are the stories, which are incredibly powerful and are told from a very personal perspective – from gay, straight, positive, negative, men, women, white, latino, african american, middle eastern."
ISJ:  Where did the tag come from?  Who came up with it (My Status Is Not A Secret)?
Ian:  Once there was a boy and his whiteboard…no really, I was holding a brainstorm session with our copywriter Katy French and Director of Production Andrea Bravo and it was still at that point in the meeting wherein the room wasn’t quite heated up. We were still discussing things like “desired outcomes” and company mission statements—important cornerstones to be sure—but we didn’t quite know what structure we were building. At these types of meetings, I can usually be found at the whiteboard with a pen in hand. I started writing out some of the commonly shared statements one might come across in dating applications—particularly gay ones as Parker had previously shared one he didn’t like seeing: DDF UB2 (drug and disease free, you be too). He felt that this “requirement” was a result of precisely the kind of stigma we were looking to help eradicate with this campaign—the kind of stigma that precluded people from not discussing status openly. I thought, “what would be something I’d want to hear someone say in regards to their status?” “My Status Is Not A Secret.” I wrote it without saying it out loud. Nobody said anything at first. Katy, Andrea, and I all looked at it, each other, and finally said, “Yeah. This is it.”
“Yeah. This is it.”
ISJ:  Why won’t this campaign become more of the same (i.e.: similar messages to HIV campaigns already launched and already at times exhausted)?
John:  The campaign is to educate and to open hearts, not to throw out a bunch of cold facts without context.  We sought to educate through testimony, through story, and that makes it different.  Especially in that we assembled a group of such engaging and honest participants, both for the videos and for the written testimonies. I think de-stigmatizing HIV while still encouraging folks to keep themselves and their sexual partners safe can be achieved best through compassion, and I think it’s very easy to feel compassion and love for the people revealing themselves on this site.  I also think that keeping the people in your life safe isn’t just about preventing HIV transmission, it’s about fostering safety to be honest, to feel safety in support, in being taken care of and in being loved unconditionally. Is that fluffy?  I hope not.  I found out my negative status for the first time in 1987, and have tested negative over and over since, but I am quite sure that we are all living with HIV. I’ve had long time partners who are positive.  I’ve lost many friends.  I’ve learned about living in the moment and of living in courage like no other generation of gays.  We are all in this together.
"Is that fluffy?  I hope not"
Parker:  I think its the perspective and the vulnerability of those that have stepped up to share their stories.
ISJ:  Why the social element of sharing reader submissions?  Where does it all go? 
Ian:  Knowing one’s status is an act of taking responsibility for one’s body and mind. Gay or straight, positive or negative, the ability to own that knowledge is empowering. With that knowledge an individual has the choice of whether to share one’s status with others. We wanted to have a place where people of any race, gender, sexual orientation, or HIV status could go to demonstrate that power and self-confidence. At the moment, those quotes live on the My Status Is Not A Secret site as a repository for diverse thought and opinion on knowing and disclosing status. Who knows—in the future, there could be even more paths for those stories to take.
Parker: For me it’s all about sharing. This is one way people can engage and make their own statement – which is the most powerful of all.
Josh Robbins Adds to HIV Campaign
ISJ:  From the agency perspective, share the ‘creative’ process and how you hope it resonates.
Parker: We started with a lot of trust from the get go.  And I’m not the easiest client. I have a lot of opinions and it’s not easy for me to let go of control — especially control of my story. But I had a lot of faith in the team.
John:  The Advisorie Group, which is my agency that partnered with Column Five, came in late in the process, when we got to the videos.  We decided early on that this was only going to resonate if I were to personally sit with each of the interview participants, one on one in a small room and develop a relationship with each of them on film.  In the editing process we removed my voice asking the questions to make it all about them.  I hope that makes viewers feel like they are the ones interacting with the folks on the films.  Although that was the overlying creative process, each person’s interview was a very different experience.  Some talked nearly non-stop for up to an hour each.  Others had conversations with me and asked me questions about my own experience, which I loved.  Who could ask for a more satisfying creative endeavor?
Ian:  We approached the project in a similar fashion to other projects gathering inspiration, wireframing*, scaling and rescaling to budget, and many rounds of content, but always with a conscious eye toward elevating the human element and a respect toward people’s personal choices when it comes to HIV treatment and prevention efforts.  I’d enjoyed working with John Saint-Denis of The Advisorie Group before on a series of short films for the Impulse Group so I brought him on board as soon as it became clear we were going to be producing video. It wasn’t until the day of shooting that we decided it would be more than just one short piece. We realized in the midst of interviews that the richness and honesty contained in the stories people were entrusting us with were too precious to relegate to one video. Out of that a 45-minute documentary was born along with individual interviews that will be rolled out over the first few weeks of the campaign. My hope is that people start to think differently about HIV in that testing doesn’t have to be so frightening, that HIV can be a manageable disease for those with access to care, and that having conversations about status can lead to more intimate experiences.
"My hope is that people start to think differently about HIV in that testing doesn’t have to be so frightening, that HIV can be a manageable disease for those with access to care, and that having conversations about status can lead to more intimate experiences."

Check out this engaging and awesome HIV campaign now! 

My Status Is Not A Secret was designed and built by Column Five.  Interviews were produced by The Advisorie Group, Mimi Fuenzalida, Ian Klein, John Saint-Denis and Parker Trewin.
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Thank you to Josh for allowing us to share this post. If you would like to know more about Josh's work you can follow him on twitter here.

Thursday, July 25, 2013

Stopping the Deadliest Epidemic: Stigma

Ladies and gentlemen –we are in the midst of a global epidemic, more terrifying and destructive than anything depicted in the summer blockbuster, World War Z!

The menace is a harmful state of thought, capable of endangering the health and well being of individuals outside of its host – it’s called stigma. While stigma takes many forms, the particular strain we will be discussing is HIV stigma. “HIV/AIDS-related stigma is a complex concept that refers to prejudice, discounting, discrediting and discrimination directed at persons perceived to have AIDS or HIV, as well as their partners, friends, families and communities” [1].

HIV stigma can result in such harmful outcomes as [1,2]:
  • Preventing people from getting tested and seeking treatment
  • Loss of income/livelihood
  • Loss of marriage and childbearing options
  • Poor care within the health sector
  • Withdrawal of caregiving in the home
  • Loss of hope and feelings of worthlessness
  • Loss of reputation



Luckily there is a way for you to help actively prevent its spread. By taking the following steps, whether you are living with HIV or not, you can stop the spread of HIV stigma!

  1. Educate Yourself:Learn the facts about how HIV is spread, how a person can lead a full and healthy life with HIV, the proper language for discussing the virus, etc. By educating yourself, not only can you protect yourself from contracting or spreading HIV and stigma, but you can speak up and educate others!
  1. Speak Up:When someone has an incorrect perception of HIV (for example: they believe that you can get HIV from sharing food with someone who is living with the virus) you should speak up and correct that misunderstanding in order to stop the spread of HIV stigma. It is very important not to be afraid to talk about HIV. By speaking up, starting a conversation, and educating others about the disease (what it is, what it isn’t, what causes it, how it is treated, etc.), YOU can help maintain a healthy dialogue that challenges negative, false, perceptions. You can do this frequently and virtually by blogging, sharing articles, etc.
  1. Be Supportive:Don't let internalized stigma build up among those living with HIV. Whether you are or are not living with HIV yourself, if you come across someone who is struggling as a result of such HIV stigma, show that you are there for that individual and help them realize that there is a community of people they can turn to for support.
  1. Take Care of Yourself:If you do not have HIV, be sure to practice safe sex and get routinely tested for HIV. If you already have HIV, make sure that you are monitoring your viral load and sticking to whatever treatment you and your healthcare provider have worked out!
  1. Live:If you are HIV positive, it’s not the end. As Josh Robbins, from I'm Still Josh, so eloquently put it when he was coming to terms with his positive status: "I'm still Josh, you still be you." You can and should still live your life the way you have always wanted to. Be an example for yourself and others!

If you follow these measures, you will not only stop the spread of stigma, but also improve the health of others around you! More people will feel confident to take measures to prevent HIV, to get tested, get treated if necessary, and live a healthy life!


Resources:

Further reading:


Works Cited:

  1. "How Does Stigma Affect HIV Prevention and Treatment?" Center for AIDS Prevention Studies. UCSF, n.d. Web. July 2013. <http://caps.ucsf.edu/factsheets/stigma/>.
  2. "HIV & AIDS Stigma and Discrimination." AVERT. N.p., n.d. Web. July 2013. <http://www.avert.org/hiv-aids-stigma.htm#contentTable3>.

Wednesday, July 3, 2013

An exclusive from Josh Robbins of imstilljosh.com

Breaking news from Josh Robbins of imstilljosh.com!

In our interview on June 17th, 2013, Josh revealed the next incredible contribution he is making to the community of people living with HIV. He is going to be creating an I’m Still Josh (ISJ) HIV phone/tablet app!

“I have looked at all the HIV apps on the market and while they all have their own individual amazingness, there is no particular one that I would go ‘hell yeah this is the HIV app for those of us living with HIV,’” said Josh, when explaining his desire to create his own app.

Josh’s goal is to make an HIV app that will be truly useful for people living with HIV.

Some of his ideas for an ISJ HIV app include a:
  • Discrete icon: it would be hidden behind what looks like a camera application so the icon doesn’t, according to Josh, “scream HIV”
  • Password: so no one but the user can access the user’s personal information
  • Health newsfeed: with the latest HIV research and information. The newsfeed will be interactive and not promote any one individual health product or pharmaceutical organization.
  • HIV data tracker: This will track information  such as a user’s CD4 count, viral load, etc.  All data will be able to be translated into a graph or table.
    • But wait there’s more! Furthermore, users will be able to send this data to their computer, email, or wherever they want in the event they want it for their records or to share with a physician. As with all other aspects of the app, there will be no identifying information on these files to connect it back to the user.

Sound interesting? Is there something you would like to see on the ISJ HIV app? Josh would love to get your feedback on what you think would be an important feature to include! If you have a great idea (and if you are part of our SAN community, we are certain you do!) contact Josh!


In order to make this app a reality, Josh is currently in the process of raising $3,000. If you would like to make a contribution click here!

The SAN looks forward to seeing this awesome new application from Josh and ISJ! We are certain it will have as big an impact in the community of advocates and people living with HIV as Josh himself has!


A big, big thank you to Josh for an amazing interview! Be sure to check out the blog post or the podcast if you haven’t already! And to learn more about Josh and his amazing work visit his website, Facebook, and Twitter!


Thursday, June 27, 2013

An Interview with "Stigma Warrior," Josh, from imstilljosh.com


Josh Robbins learned on Jan. 24, 2012 that he was HIV positive. He “decided to make a blog because [his] new circumstance of being newly poz [wasn’t his] death sentence… or even close to what defines [HIM] as Josh.” His blog has gone on to inspire many allies and people living with HIV, and he continues to a strong figure in stopping the spread of stigma.

Visit imstilljosh.com to learn more about this incredible individual!

Listen to the podcast of this interview! 


SAN:  You have been running your blog for about a year and a half now—what has been one of the most memorable moments or learning experiences?

Josh: When I started the blog, I didn’t know what it was or would be—and I still feel that way sometimes. Through this medium, I am just sharing my experiences and journey and what it has been like for me to live with something day-to-day, month-to-month, and now over a year that I was completely scared of as a gay man.

With that said, it has been a process of seeing this platform grow and handling the unexpected responsibility that comes with it. I have been surprised with the amount of people who engage with me through I'm Still Josh (ISJ). Almost every day someone contacts me and shares their very personal stories which I am honored and humbled to hear. That has really been the biggest thing from imstilljosh.com and so I feel partly a responsibility to respond to those people for sharing that. I want to thank them for investing their time and for hearing about my continuous journey.

SAN: What do you think your impact has been in terms of stigma reduction?

Josh: What I found is that we have these digital stigma warriors (and I like to include myself in that) who are changing the way people think about HIV. There are different ways of understanding HIV, for example: as an HIV negative person who thinks HIV is the worst thing that could happen to you and living in fear of it; and then as an individual who is diagnosed and realizes it is not a death sentence and you can still be you. Closing those mental barriers and taking down those walls --it requires talk from people and organizations like ours to do this. That is what I feel like I am a part of and what I have committed to thus far.

I believe that if we catch people who are recently diagnosed and we catch them early enough and encourage the hell out of them then we have the ability to change them from being victims to heroic stigma warriors who educate the community about what HIV is, how to prevent it, and how to live alongside people like us. That encouragement period of time is so important to me and that is what I have concentrated the most on. That part of my life has the most success. It is something I am very passionate about.

SAN: Well I saw you started an encouragement wall on Facebook, so that is a very concrete way that you are digitally supporting people.

Josh: Yes! And I haven’t officially launched it yet—but my goal is for it to be the largest digital encouragement wall for those recently living with HIV. What I am doing is getting quotes from different significant people to influence how those who are recently living with HIV feel about themselves.

The idea actually came from the AIDS Quilt. It is so big and people are constantly adding to it, and that’s what I hope to see from the Encouragement Wall on ISJ. Eventually users will be able to come to the site and make their own and have their work immediately added to the wall. I am excited to see how it develops with people’s different words, pictures, and forms of expression.


“If you don’t talk about HIV, and you don’t 
talk about those elements that turn 
into stigma—how can you ever 
combat it and end it?”


SAN: That sounds great! Us too! What do you think the most effective way for people to reduce stigma is (aka be a #StigmaWarrior)?

Josh: I think that HIV needs to become real to individuals and their networks by talking about it in a very personal way. It requires a bit of trust and vulnerability from people--like myself--who are living with HIV. Furthermore, it is equally as important for people to stand up as allies to and speak out for the community of people living with HIV.

The whole reason I got involved with this was because I went to a group therapy session for people living with HIV in Nashville. Everyone seemed to have an attitude of defeat.

They told me: “Josh, you just don’t understand what it is like to hear these words, for people to not want to date you because of this virus.”

My response was: “If you don’t talk about HIV, and you don’t talk about those elements that turn into stigma—how can you ever combat it and end it?”

For me that was an epiphany --when I left and I refused to shut up. From that, I have really learned to and convinced myself that I am going to be ok, all of which has really reduced my internal stress as well as helped my health and impacted my view on HIV.

SAN: Very true. Well, those are all my questions. Thank you again so much for taking the time to do this interview. It has been a real pleasure.

Josh: Same here, but before we go I want to tell you something… 

Check out the exclusive story Josh gave the SAN!