Violence and HIV/AIDS: Many Women Experience a Double Burden

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Stigma, HIV and Sexual Health in India: A Peer Educator's Perspective

The Government of India estimates that about 2.40 million Indians are living with HIV, with children (<15) accounting for 3.5% of all infections. In addition, 39% of the total number of people living with HIV are women. As such, stigma and discrimination towards those living with HIV is widespread. 

Nevertheless, there are numerous organizations that are working tirelessly to combat the general lack of information about HIV, as well as the rampant stigma that is associated with it. One such organization is The YP Foundation, who through their Know Your Body, Know Your Rights (KYBKYR) division is seeking to dispel myths and misunderstandings about HIV and sexual health among young people in India. 

What follows is an interview on stigma, HIV and sexual health in India with Sukhmani Kaur, Peer Educator at the Know Your Body, Know Your Rights division of The YP Foundation. In her time as a Peer Educator, Sukhmani has held workshops on comprehensive sexual health & reproductive rights, and HIV/AIDS with over a 100 girls and young women across India.  

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SAN: How does the Know Your Body, Know Your Rights program of The YP Foundation seek to address issues of stigma and discrimination among young people in India?

Sukhmani: The Know Your Body, Know Your Rights branch of The YP Foundation is a youth-led program which provides young people with an opportunity to enhance their knowledge and skills in the fields of health, gender, education, sexuality and human rights. It enables them to create, strengthen and promote new policies and programs by building leadership, with a special focus on peer education.

The peer educators are trained thoroughly on sexuality education and motivated to broaden their perspectives by addressing the various issues of stigma and discrimination at the national and international level. They are encouraged to think about the various possible solutions to the problems that dominate the sphere of sexuality, gender and health. The role of the peer educator extends to spreading awareness and imparting knowledge among other young people about stigma, and to also shed light on the common issues of discrimination with a set of coping strategies, through various workshops and advocacy programs.

SAN: What role do you think the persistence of stigma plays in the continuing prevalence of HIV and AIDS in India?

Sukhmani: The stigma attached to HIV and AIDS exists in a variety of ways, including shunning, discrimination and avoidance of those living with HIV. Stigma-related violence can prevent many people from seeking HIV testing, which could ultimately perpetuate the spread of HIV. Many people fear the absence of confidentiality and are consequently unable to disclose their HIV status.

Fear of rejection and violence also prevents people from seeing a doctor and seeking a secured treatment. Also, the widespread perceived association of AIDS with homosexuality, prostitution and drug abuse, which are already stigmatized in Indian society, has generated intense fear and resentment among the population at large. At a policy level, the stigma associated with HIV can deter the government from taking fast, effective action against HIV and AIDS. Thus, stigma is an important barrier to public action, making AIDS the silent killer. 

SAN: Do you think there is a strong correlation between the absence of testing services, lack of general information and the existence of taboos and stigma?

Sukhmani: Yes, undoubtedly there is a strong correlation between the absence of testing services, lack of general information and the existence of stigma and taboos. In health care settings, people living with HIV can experience stigma and discrimination such as being refused medicines or access to health facilities, receiving HIV testing without consent, and a lack of confidentiality. Many people do not get to choose to who, when and how to disclose their HIV status.

In the workplace, people living with HIV may suffer stigma from their co-workers, in the form of social isolation, or discriminatory practices such as termination of employment. Fear of an employer's reaction can also cause anxiety to a person living with HIV.

Despite the best efforts of civil society organizations, in India a large proportion of the population is still unaware of the distinction between HIV and AIDS, where the two terms are used as synonyms. This can arguably be one of the major causes for the generation of various myths surrounding HIV and AIDS. Also, a considerable number of people do not have adequate access to clean and secure health facilities, condoms and ART therapies. Because of the lack of general information, many are not aware of the modes of transmission and prevention, and therefore associate irrelevant actions, such as holding hands, kissing and hugging to HIV transmission.

SAN: How do you view the efforts of the government of India with regard to addressing issues of stigma and Discrimination?

Sukhmani: HIV and AIDS are major causes of concern for the Government of India. The government's major AIDS control initiative is the National AIDS Control Program and the premiere AIDS agency is the National AIDS Control Organization (NACO). The organization attempts to provide a dignified support to all the people living with HIV, as well as access to quality health care.

With sustained effort, the government has been successful in reducing HIV transmission through blood transfusion by ensuring the availability and safety of blood in blood banks. Mother to child transmission of HIV has also been reduced considerably by providing access to various testing services and experienced counseling. With the effective use of media, the government has also attempted to impart knowledge about the various modes of transmission and prevention. Condoms have also been made cheaper and easily available in some areas, which has also helped in the reduction of other sexually transmitted diseases.

However, to reduce the stigma and discrimination that surrounds HIV and AIDS, the government needs to redirect its focus on comprehensive sexuality education. All adolescents and adults should have access to sex education. People should also be provided detailed information about the various modes of transmission of HIV, and ways to prevent it, so as to dispel myths that surround HIV and AIDS. The stigma around the use of condoms should be eliminated for its effective usage. Also, it is imperative to completely eliminate stigma related violence in workplaces and health care centers. By improving the implementation of the policies undertaken by the various centers at the state level, the government could also make the access to testing services and medicinal drugs affordable and convenient.

SAN: In your work, have you seen a reduction in the stigma associated with HIV, especially among young people?

Sukhmani: The Know Your Body Know Your Rights Program of The YP Foundation creates and advances platforms for young people to advocate with decision makers for Comprehensive Sexuality Education. With a special focus on the rights-based approach, the program has been successful in reducing stigma associated with HIV and AIDS in the locations that it has worked in. In addition to providing detailed and accurate information about HIV, KYBKYR also attempts to eliminate the myths and misconceptions surrounding it. Other key objectives include sensitizing people about all forms of violence and discrimination, increasing access to quality health care, educating the youth and inculcating value education and clarification.

KYBKYR has also been successful in strengthening youth led initiatives and movements and advancing young people's human rights by building leadership. Various taboos and issues of discrimination are carefully addressed with accurate coping methods and strategies. Realizing the importance of educating people about HIV and AIDS, more and more young people have been targeted for spreading awareness about its causes, prevention and treatment. Also, it is important to realize that AIDS is not 'someone else's problem'. It is an issue that everyone should fight for, so as to completely eliminate all the myths and misconceptions and treat those living with HIV with dignity and respect. 

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To learn more about the Know Your Body, Know Your Rights Campaign check out their facebook page and their website. 

To learn more about The YP Foundation visit their facebook page and their website

New HIV Campaign: My Status is Not A Secret by Josh Robbins

This post originally appeared on Josh Robbins' Blog

Conversation-starting think tank behind “Knowing” and “Open” partner with top visual agency for new engagement platform and interview series by wanting everyone to say “my status is not a secret”

The creative collective The Advisorie Group, the peeps behind “Knowing” and “Open“, never cease to get my happy-wheels turning easily.  But, this time, the championship HIV campaign might have just been taken when they partnered with Parker Trewin (AIDS/LifeCycle participant) and the hot creative agency Column Five to launch “My Status Is Not A Secret.”

“If people are going to be motivated to get tested and, if needed, get treatment, we need to bring conversations about HIV/AIDS out of the dark and into the light,” Trewin says. After living with HIV for 10 years, Trewin only recently came out to his family as HIV-positive. He adds that, “We can each play a part, which is just one reason for me to finally tell my story—and why my status is no longer a secret.”

This year, Trewin rides in the AIDS/LifeCycle with an ambitious fundraising goal to give back to two organizations that have existed since before HIV had a name: the San Francisco AIDS Foundation and the LA Gay & Lesbian Center. To support Trewin in his efforts, the My Status Is Not A Secret site offers opportunities for visitors to help fund AIDS/LifeCycle participants.

But that’s the obvious of the new HIV campaign launched 4.2.14.

For me, I’m always interested in the “why” of things.  Maybe it’s the inherent reaction I have that dates back to my childhood, when I would always ask my parents the question: “But, why?” and they would always answer: “Because.” — driving me insane.  But, I’m curious.  So, I asked the team to answer my “why” questions. They agreed.

Here are the players chatting– Parker Trewin (Inspiration for the site), John Saint-Denis (The Advisorie Group), Ian Klein (Senior Producer, Column Five and all around cool guy) and mentions of Jason Lankow (the King guru/CEO/Co-founder of Column Five). And, well, I’m Josh Robbins– and I run a cool HIV blog.

ISJ:  Why the campaign? Why the website?

Parker:  The campaign started from an ask for the AIDS/Lifecycle – a 545-mile charity bike ride. I asked Jason if Column Five, who I had worked with, would donate some funds to get me on my way.  Jason said he thought it would be more powerful to donate some time. (Actually a lot of time.)  He assigned me Ian and Andrea Bravo and we investigated two reasons why I was so passionate about my efforts: getting a second chance at life and combating stigma. We thought “stigma” was the more powerful theme and what started out as a fundraising site grew into something we think is much bigger. What makes it unique are the stories, which are incredibly powerful and are told from a very personal perspective – from gay, straight, positive, negative, men, women, white, latino, african american, middle eastern. It was important to me that we explore in the widest range possible why people (and why people don’t) know their status and share their status. I was interested in not the choices people make but why people make those choices. And if we lead by example couldn’t we then help people be more empowered to make better choices? It was a way to give back.

"What makes it unique are the stories, which are incredibly powerful and are told from a very personal perspective – from gay, straight, positive, negative, men, women, white, latino, african american, middle eastern."

ISJ:  Where did the tag come from?  Who came up with it (My Status Is Not A Secret)?

Ian:  Once there was a boy and his whiteboard…no really, I was holding a brainstorm session with our copywriter Katy French and Director of Production Andrea Bravo and it was still at that point in the meeting wherein the room wasn’t quite heated up. We were still discussing things like “desired outcomes” and company mission statements—important cornerstones to be sure—but we didn’t quite know what structure we were building. At these types of meetings, I can usually be found at the whiteboard with a pen in hand. I started writing out some of the commonly shared statements one might come across in dating applications—particularly gay ones as Parker had previously shared one he didn’t like seeing: DDF UB2 (drug and disease free, you be too). He felt that this “requirement” was a result of precisely the kind of stigma we were looking to help eradicate with this campaign—the kind of stigma that precluded people from not discussing status openly. I thought, “what would be something I’d want to hear someone say in regards to their status?” “My Status Is Not A Secret.” I wrote it without saying it out loud. Nobody said anything at first. Katy, Andrea, and I all looked at it, each other, and finally said, “Yeah. This is it.”

“Yeah. This is it.”

ISJ:  Why won’t this campaign become more of the same (i.e.: similar messages to HIV campaigns already launched and already at times exhausted)?

John:  The campaign is to educate and to open hearts, not to throw out a bunch of cold facts without context.  We sought to educate through testimony, through story, and that makes it different.  Especially in that we assembled a group of such engaging and honest participants, both for the videos and for the written testimonies. I think de-stigmatizing HIV while still encouraging folks to keep themselves and their sexual partners safe can be achieved best through compassion, and I think it’s very easy to feel compassion and love for the people revealing themselves on this site.  I also think that keeping the people in your life safe isn’t just about preventing HIV transmission, it’s about fostering safety to be honest, to feel safety in support, in being taken care of and in being loved unconditionally. Is that fluffy?  I hope not.  I found out my negative status for the first time in 1987, and have tested negative over and over since, but I am quite sure that we are all living with HIV. I’ve had long time partners who are positive.  I’ve lost many friends.  I’ve learned about living in the moment and of living in courage like no other generation of gays.  We are all in this together.

"Is that fluffy?  I hope not"

Parker:  I think its the perspective and the vulnerability of those that have stepped up to share their stories.

ISJ:  Why the social element of sharing reader submissions?  Where does it all go? 

Ian:  Knowing one’s status is an act of taking responsibility for one’s body and mind. Gay or straight, positive or negative, the ability to own that knowledge is empowering. With that knowledge an individual has the choice of whether to share one’s status with others. We wanted to have a place where people of any race, gender, sexual orientation, or HIV status could go to demonstrate that power and self-confidence. At the moment, those quotes live on the My Status Is Not A Secret site as a repository for diverse thought and opinion on knowing and disclosing status. Who knows—in the future, there could be even more paths for those stories to take.

Parker: For me it’s all about sharing. This is one way people can engage and make their own statement – which is the most powerful of all.

ISJ:  From the agency perspective, share the ‘creative’ process and how you hope it resonates.

Parker: We started with a lot of trust from the get go.  And I’m not the easiest client. I have a lot of opinions and it’s not easy for me to let go of control — especially control of my story. But I had a lot of faith in the team.

John:  The Advisorie Group, which is my agency that partnered with Column Five, came in late in the process, when we got to the videos.  We decided early on that this was only going to resonate if I were to personally sit with each of the interview participants, one on one in a small room and develop a relationship with each of them on film.  In the editing process we removed my voice asking the questions to make it all about them.  I hope that makes viewers feel like they are the ones interacting with the folks on the films.  Although that was the overlying creative process, each person’s interview was a very different experience.  Some talked nearly non-stop for up to an hour each.  Others had conversations with me and asked me questions about my own experience, which I loved.  Who could ask for a more satisfying creative endeavor?

Ian:  We approached the project in a similar fashion to other projects gathering inspiration, wireframing*, scaling and rescaling to budget, and many rounds of content, but always with a conscious eye toward elevating the human element and a respect toward people’s personal choices when it comes to HIV treatment and prevention efforts.  I’d enjoyed working with John Saint-Denis of The Advisorie Group before on a series of short films for the Impulse Group so I brought him on board as soon as it became clear we were going to be producing video. It wasn’t until the day of shooting that we decided it would be more than just one short piece. We realized in the midst of interviews that the richness and honesty contained in the stories people were entrusting us with were too precious to relegate to one video. Out of that a 45-minute documentary was born along with individual interviews that will be rolled out over the first few weeks of the campaign. My hope is that people start to think differently about HIV in that testing doesn’t have to be so frightening, that HIV can be a manageable disease for those with access to care, and that having conversations about status can lead to more intimate experiences.

"My hope is that people start to think differently about HIV in that testing doesn’t have to be so frightening, that HIV can be a manageable disease for those with access to care, and that having conversations about status can lead to more intimate experiences."

Check out this engaging and awesome HIV campaign now! 

My Status Is Not A Secret was designed and built by Column Five.  Interviews were produced by The Advisorie Group, Mimi Fuenzalida, Ian Klein, John Saint-Denis and Parker Trewin.

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Thank you to Josh for allowing us to share this post. If you would like to know more about Josh's work you can follow him on twitter here.

Will HIV Ever Be Safe Enough for You?

This post originally appeared on Mark S. King's Blog.

There is a classic episode of Oprah from 1987 that can still raise my blood pressure. That year, the tiny town of Williamson, West Virginia, became part of a national discussion about AIDS when Mike Sisco, who had returned to his home town to die of the disease, dared to step into a public pool.

The community freakout was immediate. Sisco was quickly labeled a psychopath (rumors emerged accusing him of spitting into food at the grocery store), and the town pool was closed the next day to begin a Silkwood-style pressurized cleaning.

Soon thereafter, Oprah Winfrey arrived with cameras for a town hall forum about the incident.  Fear was the order of the day. “If there’s just one chance in a million that somebody could catch that virus from a swimming pool,” the town’s mayor told Winfrey’s worldwide audience, “I think I did the right thing.”

Sure. Why not react in the most extreme way possible, if there is a chance in a million?

Williamson citizens were not swayed by health officials who calmly explained the established routes of HIV transmission and the impossibility of infection from a pool. “The doctors can say you can’t get it this way,” a woman countered, “but what if they come back someday and say, ‘We were wrong?’”

Indeed. What if? If there’s a chance in a million…?

That broadcast might have remained a sad footnote in HIV/AIDS history, an instructive example of people ignoring scientific fact to protect a satisfying fear, if history didn’t enjoy repeating itself so much. Today, though, the willful ignorance isn’t coming from uneducated residents of a southern town you can barely find on a map.

It’s coming from gay men. And they are just as threatened, frightened, and dismissive of science as the townsfolk of Williamson were thirty years ago.

Recently, research known as The PARTNER Study was presented at the prestigious Conference on Retroviruses and Opportunistic Infections (CROI). PARTNER proved something HIV advocates have long suspected: people with HIV with an undetectable viral load are not transmitting the virus to their partners. The study included nearly 800 couples, all involved in an HIV positive/negative relationship, gay and straight, with the positive partner maintaining an undetectable viral load. Over the course of two years, more than 30,000 sex acts were reported and documented (couples were chosen based on their tendency to have sex without condoms).

Not a single HIV transmission occurred during the study from someone with an undetectable viral load. If PARTNER had been researching a new medication, they would have stopped the trial and dispensed the drug immediately.

The PARTNER results bolster the prevention strategy known as “Treatment as Prevention” (TasP), meaning, a positive person on successful treatment prevents new infections. To date, there is not a single confirmed report of someone with an undetectable viral load infecting someone else, in studies or in real life.

Just don’t tell that to a sizable contingent of skeptical gay men, many of whom took to their keyboards to dismiss the PARTNER findings. Phrases like “false sense of security,” “positive guys lie,” “junk science,” and “if there’s even a small risk” appeared on Facebook postings and in web site comment sections. The people of Williamson must be slowly nodding their heads.

Resistance to the PARTNER study corresponds with stubborn doubts about PrEP (pre-exposure prophylaxis, or HIV negative people taking the drug Truvada to prevent infection). Although virtually every nervous argument against PrEP has been overruled by the facts, naysayers continue to either reject the evidence outright or make moral judgments about the sex lives of HIV negative gay men on PrEP.

Yes, there are unknowns. There always are when scientific studies meet the real world. And every strategy will not work for every person. But the vehement rejection of such profound breakthroughs suggests there is something more, something deeper, going on in the minds of gay men. What is it?

Our collective memories of AIDS horror are hard to shake, and that’s a good place to start. On a gut level, any study suggesting that HIV could be neutralized is met with a weary doubt. Good news is no match for the enduring grief that has shadowed us for 30 years.

The PARTNER study also threatens the view that positive men are nothing more than risks that must be managed. The study kills the HIV positive boogeyman. It means positive gay men who know their status might actually care enough about their health to seek out care, get on treatment, and become undetectable. And, once the positive partner is no longer a particular danger, both partners would bear responsibility for their actions. What an enormous psychic change that would require in our community.

It’s tough to do that when fear creeps in and “what if?” fantasy scenarios take hold. What if my partner missed a dose yesterday and, even though HIV meds stay in the bloodstream for extended periods, his viral load has inexplicably shot up? What if he isn’t being truthful about his viral load? What if he doesn’t know?

The greater threat, folks, isn’t positive guys who think they are undetectable but are not. It’s men who think they are HIV negative but are not. But we’d rather stay focused on the positive person being at fault, because, well, people with HIV lie a lot. We miss doses constantly because we have a death wish or we’re too busy finding our next victim.

I have some “what if?” questions of my own. What if these unrealistic fears were meant tostigmatize and isolate HIV positive people? What if I am undetectable and feel no responsibility to discuss my status with a sex partner because I don’t care to engage in a science lesson? What if everyone availed themselves to prevention options that worked best for them? What if my HIV status were none of your damn business?

These risks could be alleviated, of course, if everyone simply protected their own bodies when having sex with people they don’t know or trust. But that would place an equal burden on negative men, and what a bother that is.  Better to leave that discomfort to those with HIV, vectors of disease that we are. Just consider us criminals, lying to you about our viral loads and spitting in the food in Williamson, just waiting to infect you when we get the chance.

FACE OFF -- An HIV+ Man Faces His Accuser 

As long as we’re giving undue attention to fantasy scenarios we’re not focused on the real threats. The rates of STD’s are up. Young gay black men in the United States don’t have proper access to healthcare and have infection rates worse than any developed country. Our community is plagued by  alcoholism, addiction, and mental illness. Do we want to debate established science or should we devote that energy to other challenges to gay men’s health?

If you still have the arrogance to believe you could win the HIV Powerball Lottery and be the one person who gets infected in ways science has disproven, you’re perfectly entitled to that point of view.

Here are some helpful instructions, however. Carefully step away from your computer and don’t touch the cords because 50 people die of product related electrocutions each year. Walk slowly to your bedroom, being mindful of debris in your path because slip-and-falls kill 55 people every single day. Once there, refuse food or water because, well, you never know. Now slip into your bed of willful ignorance and try to make yourself comfortable.

The good people of Williamson are keeping a spot warm just for you.

Mark

p.s. In the time it took you to read this article, the number of people who were infected by someone with HIV who had no viral load was zero.

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Thank you to Mark for allowing us to share this post. If you would like to know more about his work, you can follow his twitter feed here.

5 Female #StigmaWarriors who will inspire

For those of you not in the know, Saturday the 8th is InternationalWomen’s Day, and Monday the 10th is National Women’s and Girl’s HIV/AIDSAwareness Day! All week long we have been participating in these awareness days and today we are celebrating some INCREDIBLE women who are living with HIV and fighting against stigma every day. We have highlighted five amazing female #StigmaWarriors-- though there are so many to choose from!!! Below please find a profile of each of these female #StigmaWarriors and the ways they work to stop stigma. 

We hope they will inspire you – as they inspire us every day - to join them in stopping stigma!

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Paige Rawl:

Paige Rawl is a young HIV activist who was diagnosed at the age of two. When Paige was in the sixth grade, she confided to her best friend that she was HIV-positive, and within two weeks, the entire school knew that she was living with HIV. Because students didn’t understand what living with HIV meant, Paige was bullied so much she was forced to leave school.

When Paige entered the ninth grade, she decided to turn her negative experiences into positive lessons.  At the age of fourteen she received certification by the American RedCross and became an HIV/AIDS educator. She is the youngest person who has ever received this type of certification from the Red Cross. Paige began traveling the country speaking at schools about living with HIV. She has also worked with such programs as the Indianapolis Urban League "to encourage young adults to take control of their sexual health and fight back against bullying" [1]. She even helped pass anti-bullying legislation in her home state of Indiana. Because of this extraordinary activism Paige was nominated for Seventeen Magazine’s ‘Pretty Amazing’ contestand finished in the top five.

Paige currently attends Ball State University where she is studying for a degree in Molecular Biology and hopes to become an HIV/AIDS researcher, and plans to continue to use her inspiring story to fight HIV stigma.

Hydeia Broadbent:

Hydeia was diagnosed with HIV at the age of three and by the age of six years she began her HIV/AIDS activism. Hydeia is the first African-American youth to be an HIV/AIDS activist. By the time she was twelve years old she had appeared on many national television shows, including:

• Oprah
• 20/20
• Good Morning America
• “A Conversation with Magic Johnson” on Nickelodeon.

Ebony Magazine named Hydeia one of the Most Influential 150 African Americans in 2008 and 2011. She has also been honored by the American Red Cross and received an Essence Award in 1999.

With her high pitched voice and sweet braids, Hydeia captured the hearts of the nation with ten words: “I just want people to know that [people living with HIV] are normal people.” [2] She is the little girl with AIDS who grew up, and at a time when HIV was severely misunderstood she put a human face on the condition. Hydeia continues to fight stigma through speaking engagements.

Elizabeth Glaser:

Elizabeth contracted HIV through medical malpractice and unknowingly passed the virus to her children, Ariel and Jake. Neither Ariel nor Jake could be treated because there were no antiretroviral medications approved to treat children at the time, and doctors did not believe that HIV/AIDS was prevalent among children. After Ariel’s death in 1988, and her fear that Jake would die shortly after, Elizabeth founded the Elizabeth Glaser Pediatric AIDS Foundation in order to bring hope to children living with HIV/AIDS. It spurred federal funding to study mother-to-child transmission and to produce antiretroviral medication for children.

While she passed away in 1994, her legacy lives on in Jake and the foundation that bears her name. By fighting to get treatment for her children, Elizabeth made sure that no child would ever again have to go through what Ariel and Jake went through.

Today EGPAF:

• Is supporting 7,300 HIV clinics  around the world, and programs have reached nearly 18 million women with PMTCT services
•  Has tested more than 16 million women for HIV;
•  Has enrolled nearly 2.1 million individuals, including more than 165,000 children, into HIV care and support programs; and
• Has started more than 1.1 million individuals, including nearly 99,000 children, on antiretroviral treatment.

Beatrice Were:

Africa’s most famous HIV/AIDS activist, Beatrice Were first came to fame when she publically disclosed her status and spoke out against the Ugandan government’s policies about the issue. In 1993, after her first husband died of AIDS, she founded the National Community of Women Living With HIV/AIDSin Uganda (NACOWLA), a grassroots organization which provides support and services to more than 40,000 women living with HIV in Uganda.

Beatrice first went public with her HIV status in 1995, largely to combat stigma in Uganda. Prior to her coming out about her status many did not believe someone with HIV could lead a grassroots organization to combat HIV stigma, but Beatrice proved them wrong. The surrounding media attention helped her draw attention to the largest issues facing African women living with HIV, which included lack of access to medical care and lack of support systems. Thanks to Beatrice’s guidance, grassroots organizations that fought against stigma resulted in international praise for Uganda’s HIV prevention programs. However, she has been critical of PEPFAR for allowing radical evangelicalgroups to come in and spread HIV stigma.

Beatrice continues her HIV activism and continues to promote programs which effectively fight HIV stigma.

Nina Martinez:

After being diagnosed with HIV as a young child, Nina Martinez inadvertently fought stigma thanks to her belief that HIV made her automatically related to Magic Johnson, which quickly made her popular among her peers. Her HIV activism truly took off during her time as an undergraduate at Georgetown; there Nina volunteered for research studies at the NIH and participated in the Georgetown AIDS Coalition. She has always felt comfortable in her own skin and honest about her status, and has found that has helped combat HIV stigma..

Nina fought stigma by being honest about her condition and through using humor to be open about her HIV status. Today Nina holds a master’s degree in Public Health and works as an HIV researcher. She also continues her activism through interviews and posts over social media.

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I hope these women have inspired you to join in the fight against HIV stigma – they certainly have inspired us at the SAN! Each of them demonstrates that if you believe in this cause, in your own way you can make a difference as a #StigmaWarrior. Fighting stigma is as simple as listening to someone living with HIV or going on Google and educating yourself about stigma. You can also volunteer at many places, including the Elizabeth Glaser Pediatric AIDS Foundation, or donate to NAWCOLA. It doesn't take much for you to make a world of difference and be a #StigmaWarrior!

Happy Women’s Day to all!

National Gay Men's HIV/AIDS Awareness Day: A Guest Blog by Daniel Bauer

Special Thanks to Daniel Bauer for sharing his work with the Stigma Action Network, 

in celebration of National Gay Men's HIV/AIDS Awareness Day.

To view the original blog entry, click here.

As a very out and proud gay man and 10 year warrior living with HIV/AIDS, I stand tall in an effort to bring a greater awareness to this year's National Gay Men's HIV/AIDS Awareness Day on September 27, 2012.


This morning I was searching the internet to see how this year's awareness day is shaping up; and to find elements of hope that would not only inspire me but also lend a voice to a call to action. In my search, I came across the following powerful statement by Frank J. Oldham Jr., President and CEO of the National Association of People with AIDS. I believe he sums up what I is a very necessary call to action as a gay man - a call to action I feel I must embrace and put into motion. In his words, I share this with you:


"We have a responsibility. To the quarter-million brothers and lovers we have buried. To the allies who have supported our fight for treatment access and civil rights. To ourselves.

We have a responsibility – to know our own status. Every gay man who is active with multiple partners (or thinks his partner may be) needs to get tested every three months.

We have a responsibility – to know how to protect ourselves and others. We’re excited about the potential of treatment-as-prevention and PrEP, but we all still need to keep our condoms handy.

We have a responsibility – to be as open as we can be about being HIV-positive. Sometimes disclosure isn’t safe, and safety comes first – but our brothers need to know they know people just like them who are living with the virus. And any new partner needs to know our status before the clothes come off.

We have a responsibility – to demand access to healthcare for ourselves and for all Americans. It’s not just a human right, it’s common sense. It costs the public sector more to ignore epidemic than to deal with it, and we need our elected officials to know we know that.

We have a responsibility – to demand to be treated as “normal.” We are normal. We should insist on marriage because it’s our right, and because it forces our neighbors to reconsider the homophobia that gave the HIV epidemic its opportunity to explode in the gay community and move on from there.

We have a responsibility – to love. Last year on National Gay Men's HIV/AIDS Awareness Day, we gave a Positive Leadership Award, NAPWA's highest honor, to Alvin Collins and John Sullivan. Alvin had been one of the unlucky few who, despite the best modern treatment for HIV, don't do well. John stuck to Alvin through thick and thin – and Alvin stuck to John. Alvin died this Spring. We have a responsibility to honor that love.

We have a responsibility. We changed the world in the eighties, insisting on treatment and research when Washington didn’t want to hear us. Today we have the medical and behavioral prevention tools we need to make new HIV infections a thing of the past. We insisted then. We can do it again."

So on this day - I will embrace these words and calls to action above! I hope you too will join and follow me!

I am Daniel and I am living pozitively! Thank you for following my blog!